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Mad Matters Book Review
Mad Matters: A Critical Reader in Canadian Mad Studies
Edited by: Brenda A. LeFrançois, Robert Menzies, and Geoffrey Reaume
Canadian Scholars’ Press Inc.
Toronto
2013
Review by: Kristen, Pride in a Madness
Mad Matters sits on my shelf alongside Anatomy of an Epidemic (Robert Whitaker, 2010), Talking Back to Psychiatry (Linda J. Morrison, 2009), Psychiatric Power and History of Madness (Foucault, 2008 and 2009) and Behind the Rhetoric (Jennifer Poole, 2011); books that have influenced my life as a Mad person and professional. This reader is now an important part of my activism. As psychiatry has its “bible”, the DSM, I would say that I now have mine. Mad Matters is beginning to fill a gap within education (in and outside of institutions) and mainstream discourse, showing the complexity of identities, exposing a side of psychiatry and society many prefer to ignore and by providing language to describe the experience: sanism. My only hope is that it has opened the doors for more to come and for Mad studies, scholars and people to be taken seriously.
Mad Matters is filled with diverse and key topics such as housing, media, mental health literacy, law, Indigenous ways of knowing and the oppressions of psychiatry (just to name a few). Names of contributors jump out at me like Irit Shimrat, David Reville, Don Weitz, Bonnie Burstow and Lanny Beckman, long time activists within the psychiatric survivor, antipsychiatry, ex-patient/inmate and Mad movements. Good people who eat, sleep and breathe the cause are inside these pages. The amount of lived experience in Mad Matters is nothing short of beautiful.
On a personal note, I have often said to friends, family and colleagues that I find it unacceptable and ridiculous that the western world has made great strides in bring critical of racism, sexism, classism, heterosexism etc. but sanism is still alive and well and at times outright denied to exist. I would like our system and our society to get to the point where, for example, my decision to not take psychiatric drugs is seen as a valid choice and not as wrong, a sign that I am not “truly in pain”, or as non-compliance and a symptom of “disorder”. I have received criticism for my Mad and antipsychiatry stance. They are identities I am still developing in a society that prefers I just think of myself as “sick”. I have engaged in a lot of self reflection while reading Mad Matters and this reader was a reminder that I am, as the ever famous anti-stigma campaign slogan states, “not alone”.
Mad Matters is a critical piece that I feel has been missing from the mental health dialogue and Mad studies is part of solution to changing these sanist perspectives, practices and values.
Purchase Mad Matters
“Big, Bad” Anti-Psychiatry
I’m writing this as requested by an amazing woman I know <3
Anti-psychiatry.
You’ve either never heard of it or have heard of it and may think you get it but probably don’t.
Stick “anti” in front of anything and it is (and rightfully so) assumed that it is 100% against whatever the word that follows it is. This is not the case with anti-psychiatry…not completely anyways.
I only recently, within this past year, found out what anti-psychiatry was and had actually never heard of it before. Many, because of their lack of understanding of what anti-psychiatry is, usually immediately write off as being, dare I say it, “crazy”. Who could possibly be against a system that helps them?!!? Well…….
Here is my understanding of what the general population thinks anti-psychiatry is all about: not believing that mental illness is real, not believing in medication or other treatments and believing psychiatrists are full of garbage.
To be honest that assumption is right but it’s also wrong!
I recently read a book called Talking Back to Psychiatry: The Psychiatric Consumer/Survivor/Ex-Patient Movement by Linda J. Morrison that explained what anti psychiatry or “the C/S/X movement” is.
Like many things in the world anti psychiatry exists on a spectrum. There are many ways to “be” anti psychiatry and they all have valid points to make. You have groups of people who believe in mental illness, seek treatment, are on medication and consider themselves apart of the C/S/X movement. Then there are the groups of people who do not believe in mental illness or in anything psychiatry has to offer. There are people in the middle as well (which is where I would place myself).
Regardless of where you are on the anti psychiatry spectrum the groups all have one motivating factor in common and that is POWER. Anti psychiatry is against the God-like power that psychiatrist hold over their patients.
If you’ve ever sought treatment and seen a psychiatrist you have seen their power. They tell you how you think, how you behave, what it means and only they can provide you with the cure. That’s a lot of power for one individual to have.
Those in the C/S/X movement want doctors and patients to work together. They want recognition of their knowledge on their life and their mental illness or do not want to be labelled as having an illness (which can then become a symptom of a mental illness). Having a partnership instead of a hierarchy of one being better than the other can improve the recovery process because the individual with mental health issues is seen as important and valuable instead of just an illness that knows nothing and needs to be treated by the educated one.
We have seen in cases such as women’s and civil rights when the hierarchy was removed, and those in the groups were seen as having value, they were able to rise up and be successful in the world.
Another part of the power struggles in anti psychiatry and the C/S/X movement is choice in treatment. The treatments most commonly prescribed are talk therapy and medication (especially medication). What happens to those who do not want talk therapy or medication (such as myself)? Not much can happen because we really haven’t created options! This can lead back to power because if we take away medication and therapy as being the first, and sometimes the only, option given then psychiatry loses out. (see: http://www.mindfreedom.org/campaign/choice)
It was this need for options within mental health that helped create peer support; support groups run by those with lived experience of mental illness. This provided a unique experience that you just couldn’t get in a therapists office or in a bottle. It allowed people to connect with others like themselves, to share their struggles and triumphs and support each other. When someone gets it and you know they get it, wonderful things can happen.
A more recent example that is happening within my city of Toronto, Ontario is a running club for young people who have mental illness. These young people run a few times a week and it allows them to clear their head and be active. (see: http://www.thestar.com/news/insight/article/1096474–teen-suicide-chasing-down-demons)
A final part of anti psychiatry, the C/S/X movement and power is stopping forced/involuntary treatment. As it sounds, this is when a person is given treatment without their permission. This happens more than we may think. Forced treatment definitively keeps alive the power imbalance between patients and psychiatrists and continue, to a worse extent, a lack of choice. It also helps to perpetuate stigma by telling society that people with mental illnesses are unable to care for themselves, do not know what they need and therefore the “normal, rational” ones need to step in and provide what they feel is the appropriate care. Once you get into forced treatment is it very hard to get out.
In total this amounts to PATIENT RIGHTS!
This means:
- The right to choice in treatment and accurate information on those treatments
- The right to be an expert in one’s life and illness
- The right to not be forced into treatment
- The right to refuse treatment (voluntary or involuntary treatment)
- The right to informed consent
- The right to be treated with dignity and respect
How can we change this power imbalance? It’s actually very simple.
SPEAK UP!
I say simple because it should be a basic act for us to say, “Hey, I don’t want to do this! I want to do this instead!” But the power imbalance as I have been mentioning helps to silence us. But really, who knows you better than you? No one! Especially not someone who speaks to you for 5 minutes and then can magically determine the course of your life.
This YOUR LIFE! You have ALL RIGHT to demand what you feel is best and reject what will not work. Your body, your mind! if someone won’t listen to you, keep talking or find someone else who will! Gather family and friends to advocate with you for your desired treatment (even if it is no treatment).
In summary (sorry this was so long): anti psychiatry is a mix of pro and con psychiatry but 100% for eliminating the power imbalance between doctor and patient, improving treatment options for people with mental health issues, stopping involuntary treatment, and informing and improving patient rights.
